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Undergraduate Student Presents at USC Discovery Day

Julia Pilewicz successfully presented her research project at Discover USC on Friday, April 19th. Her research project titled, Behaviors of Individuals with FXS are Associated with their Mothers’ Mental Health looked into the relationship between child behaviors and maternal well-being. and how these relationships changed with age. We are proud of you, Julia!

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Welcome, Zaynab!

We are excited to introduce Zaynab Khan, a new research specialist in our lab! Zaynab graduated in 2022 from Columbia College with a Bachelor of Science in Biology. She previously obtained a phlebotomy certification and has experience working as a medical scribe. She is interested in pursuing a career in genetic counseling. 

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Welcome, Blythe!

We are excited to introduce Blythe Vickery, who is now working in our lab as a project coordinator. Blythe is an ASHA certified speech-language pathologist with three years of research experience spanning both her undergraduate and graduate tenures at the University of South Carolina. Blythe completed graduate research culminating in a master’s thesis investigating factors… Read more »

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Now Recruiting Paid Volunteers: DEI Family Advisory Committee

Dr. Debra Reisinger of Cincinnati Children’s Hospital in Ohio was recently awarded a grant from the National Fragile X Foundation to target increasing diversity, equity, and inclusion in the diagnosis and treatment of Fragile X syndrome (FXS). As part of her grant, she will be visiting many underserved and free health clinics within the Tri-State… Read more »

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Study Highlighted by the University of South Carolina

We are excited to share that USC recently featured our study on their website. In the article, Dr. Klusek provides background on why our studies are important for women who are FMR1 premutation carriers and those who have children with Fragile X Syndrome. To read the article, use this link.

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First Annual Newsletter Published

We are excited to share the first edition of our lab’s newsletter! In this edition, we share some new faces in the lab, what we have been up to, and some preliminary findings. Thank you again for supporting our research study! To read our full newsletter, click this link!

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Lab Travels to Fragile X Advocacy Day

Dr. Klusek, Dr. Friedman, and Veronica traveled to Washington, DC, on February 26th and 27th. At this event, participants received training and then were able to meet at Capitol Hill to advocate for legislation for Fragile X Syndrome with stakeholders and representatives. To learn more about Fragile X Advocacy Day, check out the NFXF’s Website… Read more »

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Study Highlighted by National Fragile X Foundation

The National Fragile X Foundation highlighted our study, “Qualitative Study of Black and Latina Mothers,” on its website. Interested in learning more or checking out their post? Click this link!

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LivJoy Postdoctoral Fellowship Now Taking Applicants

The LivJoy Foundation, partnered with The University of South Carolina, is proud to introduce a new postdoctoral fellowship focused on research improving female outcomes with Fragile-X Syndrome. Interested in applying? Click this link, or scan the QR code located within the attached flyer.

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Oluwatoni “Toni” Ariyo Presents at Junior Science and Humanities Symposium

Toni presented her research regarding the relationship between age-related speech disfluencies and life satisfaction in mothers with the FMR1 premutation at the Junior Science and Humanities Symposium (JSHS). The JSHS allows high school students to present their research and recognize the students for their work while encouraging them to collaborate and learn from one another…. Read more »