On Wednesday, July 22, 2026, the South Carolina Statehouse hosted National Fragile X Advocacy Day, bringing together researchers, advocates, families, and community members to raise awareness about Fragile X syndrome.

Attendees heard from a great group of speakers, including University of South Carolina researchers Dr. Jessica Klusek and Dr. Jane Roberts, representatives from the Greenwood Genetic Center, and members of the Fragile X community. Among them were Roger and Faye Kuperman, leaders of South Carolina’s Fragile X Resource Group and parents of two daughters with Fragile X syndrome, who shared their family’s journey and ongoing advocacy efforts.

This year’s event was especially meaningful as it celebrated the University of South Carolina’s success in receiving a Fragile X Center grant, recognizing the university as a Center of Excellence for Fragile X research. This milestone highlights USC’s leadership in advancing awareness and understanding of Fragile X,  and further establishes South Carolina as a national hub for groundbreaking research and collaboration.

Thank you to everyone who attended, shared their experiences, and contributed to making this year’s National Fragile X Advocacy Day a meaningful and impactful event.

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