The Development in Neurogenetic Disorders Lab (DND) at The University of Illinois is currently recruiting mothers and their 18- to 24-month-old sons with fragile X syndrome for a research study on what skills support early language development. For more information, please contact the DND lab by email: [email protected] or their phone number: (217)-265-8043
Our paper titled, Characterizing the Social Interaction Style of Autism in Young Adult Males with Fragile X Syndrome, was published in the Journal of Intellectual Disability Research. This paper featured contributions from our former PhD student Carly Moser who is now at Vanderbilt University completing her postdoctoral fellowship, and our former undergraduate researcher Alyssa Campanelli who is… Read more »
Julia Pilewicz successfully presented her research project at Discover USC on Friday, April 19th. Her research project titled, Behaviors of Individuals with FXS are Associated with their Mothers’ Mental Health looked into the relationship between child behaviors and maternal well-being. and how these relationships changed with age. We are proud of you, Julia!
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Welcome, Blythe!
We are excited to introduce Blythe Vickery, who is now working in our lab as a project coordinator. Blythe is an ASHA certified speech-language pathologist with three years of research experience spanning both her undergraduate and graduate tenures at the University of South Carolina. Blythe completed graduate research culminating in a master’s thesis investigating factors… Read more »
We are excited to share that USC recently featured our study on their website. In the article, Dr. Klusek provides background on why our studies are important for women who are FMR1 premutation carriers and those who have children with Fragile X Syndrome. To read the article, use this link.
We are excited to share the first edition of our lab’s newsletter! In this edition, we share some new faces in the lab, what we have been up to, and some preliminary findings. Thank you again for supporting our research study! To read our full newsletter, click this link!
Dr. Klusek, Dr. Friedman, and Veronica traveled to Washington, DC, on February 26th and 27th. At this event, participants received training and then were able to meet at Capitol Hill to advocate for legislation for Fragile X Syndrome with stakeholders and representatives. To learn more about Fragile X Advocacy Day, check out the NFXF’s Website… Read more »
The LivJoy Foundation, partnered with The University of South Carolina, is proud to introduce a new postdoctoral fellowship focused on research improving female outcomes with Fragile-X Syndrome. Interested in applying? Click this link, or scan the QR code located within the attached flyer.
Toni presented her research regarding the relationship between age-related speech disfluencies and life satisfaction in mothers with the FMR1 premutation at the Junior Science and Humanities Symposium (JSHS). The JSHS allows high school students to present their research and recognize the students for their work while encouraging them to collaborate and learn from one another…. Read more »
We want to hear from Black and Latina mothers who have a child with fragile X! This study focuses on understanding the experiences of Black and Latina mothers of children with fragile X. In particular, we would like to know how caring for a child with fragile X syndrome has affected future life planning as… Read more »