Dr. Klusek, Dr. Friedman, and Veronica traveled to Washington, DC, on February 26th and 27th. At this event, participants received training and then were able to meet at Capitol Hill to advocate for legislation for Fragile X Syndrome with stakeholders and representatives. To learn more about Fragile X Advocacy Day, check out the NFXF’s Website… Read more »
We want to hear from Black and Latina mothers who have a child with fragile X! This study focuses on understanding the experiences of Black and Latina mothers of children with fragile X. In particular, we would like to know how caring for a child with fragile X syndrome has affected future life planning as… Read more »