Read more about our new grant here !! Click here to participate!
We are currently recruiting women who are carriers of the FMR1 premutation for several ongoing studies. The overarching goal of this research is to better understand the symptoms experience by premutation carriers as they age, and to inform the development of clinical management strategies. A flyer is included below for further reference. Click here for… Read more »
We are pleased to announce funding of our newest research study here at the lab! This study will follow women who carry the FMR1 premutation and healthy control women longitudinally over a 3-year period. The objective is to determine the trajectory and predictors of age-related symptoms experienced by premutation carriers during midlife and early old… Read more »
Veronica is a Columbia, SC local, and has been at the University of South Carolina as either student or staff since 2016. She graduated from the South Carolina Honors College in 2020 with a B.S. in Experimental Psychology and English, and is currently working on her M.A. in Clinical Mental Health Counseling. She is excited… Read more »
From the land of fields of corn, Jennifer has been in Indiana since 4th grade. She received her B.S. degree in Psychology from Purdue University on May 2022. Her interests align with the lab’s goal to develop better family-centered support services for families of children with developmental disabilities like fragile X syndrome and autism. She… Read more »
Dr. Laura Friedman recently received an F32 grant from the National Institution on Aging. Her project will examine cognitive aging profiles of mothers of children with autism and will also explore caregiving-associated risk factors that may be related to atypical cognitive aging (such as stress or poor sleep quality).
We are still recruiting families with children with fragile X who are interested in participating in our Adult Transitions study! If you are interested in participating, you can fill out our interest survey and we will reach out to you!
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Going Virtual!
In response to COVID-19, our team has been working hard to redesign the way we do studies to maximize safety. Assessments will now be conducted virtually across two short sessions. Participants can schedule the sessions at a time that is convenient for them, and participate in research from the comfort of their own homes! We… Read more »
Dr. Jessica Klusek has been awarded $149,000 from the National Institutes of Health’s Eunice Kennedy Shriver National Institute of Child Health and Human Development. She will use the two-year grant to examine aging language trajectories for women who are carriers of the FMR1 premutation.
Dr. Klusek, along with Dr. Jane Roberts and other stakeholders and advocates, gathered in the South Carolina state capitol to share their individual experiences with fragile X syndrome in honor of July 22, 2018 being proclaimed Fragile X Awareness Day. This governor’s proclamation of the inaugural South Carolina Fragile X Awareness Day was an important step in raising… Read more »