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SC Family Study Lab Featured on the NFXF Website!

You may have noticed that the SC Family Study Lab was recently featured in a National Fragile X Foundation (NFXF) article highlighting one of our committed research participants, Laurie. In “Meet Laurie, a mother of two, who also lives with the Fragile X premutation”, Laurie shares her experience of the growing clinical recognition of Fragile… Read more »

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SC Family Study goes to Washington D.C. for NFXF Advocacy Day!

The 21st National Fragile X Foundation (NFXF) Advocacy Day was held in Washington D.C. from February 24-February 25, 2025, where research labs from the University of South Carolina joined families, self-advocates, doctors, and other researchers from all over the nation to show support for the Fragile X community. Dr. Jessica Klusek and Dr. Lauren Jenner… Read more »

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Thomas Christensen Receives Randi J. Hagerman Summer Scholar Research Award

Our doctoral student Thomas Christensen received a Randi J. Hagerman Summer Scholar Research Award for his project: Exploring Social Determinants of Health and the FMR1 Premutation Symptomology in Women. Randi J. Hagerman is an esteemed professional in the world of fragile X. She is a co-founder of the National Fragile X Foundation (NFXF), and has… Read more »

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Study Highlighted by National Fragile X Foundation

The National Fragile X Foundation highlighted our study, “Qualitative Study of Black and Latina Mothers,” on its website. Interested in learning more or checking out their post? Click this link!